The Summer Preschool Rush

You might think that little Columbus, OH doesn’t have the challenges of the big city. But you’d be wrong. We have our traffic (there’s a reason we nearly named our hockey team the Orange Barrels), we have plenty of crime, and when it comes to early childhood education, we must also rush to find the best programs. (Although most don’t require an interview.)

OK, actually, preschools aren’t that hard to find around here, and in Cordy’s situation, we have a guaranteed preschool for her. But her school follows the district’s calendar, so once June rolls around, we’re on our own to find a good summer program for her.

Summer camp guides are published at the beginning of March, and like many parents of three year olds, I snagged a copy and quickly began circling any program that looked promising. Most are run by private preschools, and are somewhat academic in nature, with a lot of “summer fun” thrown in. After I narrowed it down, I began calling to see if we could get her name on the list for any of these programs. And time after time, I ran into one big problem:

“Is she potty trained?”

Oh, how I hate that question. I always want to respond back with, “Do I ask you about your bathroom habits?”

Cordy isn’t potty trained yet, and shows no signs of planning to master this task anytime soon. We have days when I ask her if she wants to use her potty, and she will. But most other days she responds with, “No thank you, I like my diaper.” And she never has asked to use the potty, either. She watches all of the other kids at school go into the little bathroom stalls and do their business, but she refuses to try.

This isn’t a big deal to me, because I know that eventually she’ll get it. The sensory issues involved with this are tough for her, so while I do encourage her and ask if she wants to use the potty several times a day, I refuse to push the issue and force her.

So finding a summer program has been difficult, because we can never get past that question on the phone. No one wants a three year old who isn’t potty trained, and no one will accept a three year old in their two year old program, where potty training isn’t necessary. (Despite the fact that most are half-day programs, so they wouldn’t need to change a pull-up before I’d be back to get her.)

And then there was this preschool.

One school, who shall remain unnamed but I’ll give you a hint that it is a chain daycare/preschool, asked me that question, and when I said she wasn’t potty trained, they asked, “Well, can you get her trained by summer? Is there any reason she’s resisting potty training?”

“Well,” I began cautiously, “She has some sensory issues…”

I was cut off. “Is she autistic?”

“Yes, but she’s very high functioning. She…”

“I’m sorry, but we don’t have the facilities to deal with an autistic child.”

“Uh, what? What kind of facilities would you need?”

“I’m sorry, we can’t accept an autistic child.”

And just like that, the conversation was over. They didn’t have the facilities for my daughter. What did they think they needed? A locked cage? A padded room? A big plastic bubble to make sure her autism didn’t rub off on the other kids?

Thankfully, Cordy’s teacher told me about a small summer program run by the school district. They can’t take everyone, so we have to apply and hope that they see Cordy’s potential lack of summer instruction as a risk of regression. And we have one other program as a possible backup, in case the school district’s program doesn’t accept her.

But now I must wait for the letter telling me where my preschooler will spend her summer. It’s not quite like the NYC preschool rush, but it’s still a little nerve-wracking.



I’m Going For A Walk – Will You Join Me?

When I was younger and had a lot more time, I participated in a few charity 5K races. Oh, don’t think for a second that I ran them. Winning didn’t matter to me, and besides, if I ran them I would have passed out before I hit 1K. A nice brisk walk was just fine for me, along with several others. I was there to support the cause, not to kill myself.

I’ve been wanting to do some of those again, and out of the blue I found and signed up for one that is May 3. Bonus: no running needed. Even better? It’s a cause I’m deeply committed to.

The Walk Now For Autism event is being held in Cincinnati on May 3, and I’ll be there with Mira on my back and Cordy and Aaron by my side. This walk is a fundraising event for Autism Speaks, an organization that is dedicated to increasing awareness about autism spectrum disorders, as well as funding research into the causes, prevention, treatments and cure for autism.

As many of you know, Cordelia was diagnosed as being on the autistic spectrum last fall. Officially, it’s PDD-NOS (pervasive developmental disorder, not otherwise specified), which means that she has autism-related delays in speech, motor skills, and social skills. I probably should have had her evaluated earlier. It took some time for me to accept that Cordy was different from many of her peers, but the full impact hit me when she was enrolled in a preschool last summer and we were told that she did not fit in well and had been permanently removed from the Friday assembly because of her inability to transition well.

She screamed as if she was in pain when they tried to make her fingerpaint. She fell to the ground, wailing, when her classmates got too loud. While the class watched a movie, she was off in another corner of the room, talking to herself as she lined up toys and created new patterns with colored blocks. And she never talked to the other kids – it was like they didn’t exist to her. If another child said hi to her, she ignored him or looked confused, not sure what to do.

She’s been attending a special needs preschool since the fall, and thanks to the therapy she receives there, her transformation has been amazing. She uses eating utensils now, something she never did before because she was afraid of dropping something gooey onto herself. She doesn’t get upset when I leave. She says hi to other kids and can name all of her friends at school. She fingerpaints! She sings! She uses full sentences to ask for things, and has even started saying “I’m sad,” instead of having a meltdown when she doesn’t get her way.

In fact, her meltdowns, which used to be a nearly daily occurrence, are now one or two a month, if that. She no longer tries to hurt herself by hitting her head on the floor, either. That has probably been the best change for me.

I can also put barrettes in her hair now. BIG accomplishment.

None of these things would have come so quickly (or at all) without help from her therapists and her skilled teachers. She still must deal with sensory issues upsetting her. She still relies too heavily on scripts (scripted phrases she repeats over and over), and while she’s more social with other kids now, the nuances of social interaction remain foreign to her.

However, these things will come with time and work. Her teacher reports that she has an amazing vocabulary and is far ahead of many of her classmates in letters, numbers, and other academic areas. She’s a smart girl with a bright future ahead of her, partially thanks to early intervention.

So it’s no surprise why I would want to participate in Walk Now For Autism. The research that has been done so far is already helping Cordy, and I want to see further research done to improve the therapies available for her and other kids on the spectrum. Cordy only gets a small amount of group therapy in her class each week (one hour of PT, OT, and speech), and while we are eligible for more therapy through the county, the wait list is long right now. We have one of the best health insurance plans in Ohio, yet our insurance refuses to pay for any therapy for Cordy. Autism is considered an “incurable and untreatable” condition by many insurance companies, and as a result any therapy must come out of pocket for us.

I also want to see more research into finding the causes of autism. Mira is nearing a year old, which is when we began to see some of Cordy’s quirks emerge. My fear that I will lose Mira’s outgoing nature to this disorder is understandable. I’m holding my breath, watching her carefully, and will likely not exhale until I see that she is a typically developing three year old. I wouldn’t trade Cordy for anything the world could offer, but parenting a child on the spectrum does have additional struggles, and having to do it twice is hard to imagine.

I set a modest goal of raising $250 for the walk. I think I can raise that amount in a week and a half, and would love to raise even more than that if possible.(Edited to add: Thanks to your generous donations, I’m now raising the goal to $500!) Would you consider contributing to my walk? Even $5 helps. Locals who want to walk with us on May 3 are also welcome to join my team. Online donations go straight to Autism Speaks, and like any donation to charity, are tax deductible. Thanks for anything you can give.

Also, while I’m on this topic, read my review of the Kibbles Rockin’ Clubhouse DVD at Mommy’s Must Haves today. It’s a DVD designed for children on the spectrum that teaches social skills, along with providing strategies for parents using music therapy and speech therapy.



The Battle Between Emotion and Logic Regarding Vaccinations

I consider myself lucky that my children don’t go to the doctor very often. I can count on one hand the number of times we’ve taken either of them to the doctor for something other than a routine well-child check. Of course, I’ve probably jinxed myself now, and will endure a long string of ear infections, cuts and strange rashes as a punishment for bragging about that.

But even the well-child visits are stressful for me. Cordy’s visits always start with a full-blown meltdown because she is terrified of the doctor’s office. Thankfully, those are only once a year now. For Mira, however, my stress results from the mental preparation of what will happen with each visit.

I took Mira to the pediatrician for her nine month check-up the other day. The first part of the exam went relatively well: 20 pounds, 29.5 inches long. Cordy may be the Amazon warrior princess, but Mira is proving to be an Amazon in height as well. (But not quite at warrior weight.) She charmed the nurse and charmed her doctor, babbling at both of them, waving her arms and flashing wide, scrunchy-eye grins.

Then the doctor got serious, and the discussion about her vaccinations began. Mira is on a delayed schedule for vaccines, and needed one shot that day. But the one year vaccinations are looming three months in the future, and I felt we needed to establish in advance a schedule we could all agree on.

I’m not against vaccinations. I know how important they are at providing herd immunity against a collection of diseases that once claimed so many lives. As a student nurse, the logical side of me knows they are relatively safe and effective. A couple of months ago, I had the chance to speak with Dr. Paul Offit, Chief of Infectious Diseases at Children’s Hospital of Philly. He explained how today’s standard children’s vaccines are safer than years ago, and that no study has been able to prove a conclusive connection between vaccines and autism. The logical side of me nods in agreement. After all, I had all of my vaccinations as a kid, and I was fine.

But then the mom in me says wait. Something feels off. While there is no definitive proof that vaccines cause autism, I am still hesitant. I remember the smiley baby who babbled and chatted and acted like every other baby three years ago. And I remember how, between 12 and 18 months, her personality shifted, ever so slightly, and she slowly pulled inward, became more difficult to interact with, and developed the series of traits that would eventually lead to a school psychologist asking me if I had heard of autism spectrum.

I don’t think vaccines cause autism. At least, not entirely. There is a genetic component – there has to be to explain how one child, raised in a manner similar to his/her peers, with similar exposures to environmental toxins, can develop autism while another child experiences a typical development pattern. That genetic defect is the underlying condition, but I think there has to be some sort of trigger also. And I can see how vaccines, or mercury in the water, or BPA in plastics, or phthalates in baby shampoo and lotion, or some other environmental toxin could provide that trigger that activates the genetic problem.

I’ll admit I’m doing it all differently with Mira. I breastfed her for eight months. (Cordy wasn’t as into breastfeeding.) We use BPA-free bottles now, and she eats mostly organic foods. For vaccinations, we’ve taken it slowly, with only one or two vaccines at a time.

So when her doctor mentioned her one year vaccinations coming up, I carefully explained that I didn’t want her to have the MMR vaccine at that time, and that I saw the Hepatitis A vaccine as an unnecessary vaccine. I also mentioned that I’d rather try to get her exposed to chicken pox on our own before considering that vaccine. After I expressed my preferences, I held my breath and waited for the lecture in return.

Surprisingly, her pediatrician looked at me and said, “That’s fine. I’m OK with delaying the MMR. It’s not like there has been a measles outbreak in this area. If there was, you can bet we’d call you to revisit this discussion. As long as she gets it before school, she’ll be fine.”

Whew. She understood my conflicted feelings on vaccines, and together we worked out a long-term schedule to follow. I want Mira to be protected, but I also want to take it slowly and not overload her system.

It’s a completely emotional response, and I know that. It’s possible Mira’s genetics are such that she will never develop autism. It’s also possible that no matter how different I try to make things, she will still succumb to it. Trying something different gives me hope, though. It gives me something to control in this sea of uncertainty, and I’ll cling to that hope for as long as I can.



Haiku Friday: A Hair-Do

Cordy’s new breakthrough:
Her hair is OK to touch
Without a meltdown

Rubber bands and bows –
Ringlets cascading downward
She looks so girly



Cordy’s sensory issue with her hair has been a problem for over a year. Those gorgeous curls are always begging for attention, yet any attempt to touch them is met with screams and wails. This is especially a problem for distant family and strangers, who seem to be drawn to those Shirley Temple ringlets with a burning desire to pull one of those little golden springs.

Every time we wash her hair is a battle. While she likes to splash and play in the bath, she despises water on her head. And combing out her curls takes an entire episode of Bunnytown, since we have to distract her with TV to even have a chance at getting a comb near her. Sure, she has pretty hair, however, you wouldn’t want to be the one to care for it.

But this week we were greeted with a surprise when she came home from school on Monday. The hair on either side of her face was pulled up and secured with a ponytail holder. She now asks for bows in her hair, too. Who is this child? Where did she come from, and why is she asking me for bows?

Her teacher told me she’s been slowly working with Cordy to reduce the sensitivity, and as a result she will let us pull her hair up. Amazing.

To play along for Haiku Friday, follow these steps:

1. Write your own haiku on your blog. You can do one or many, all following a theme or just random. What’s a haiku, you ask? Click here.

2. Sign the Mister Linky below or at Jennifer’s blog with your name and the link to your haiku post (the specific post URL, not your generic blog URL). If you need help with this, contact Jennifer or myself.

3. Pick up a Haiku Friday button to display on the post or in your sidebar by clicking the button above.



Haiku Friday: More Changes From The Warrior Princess

Drawing a picture
Look, mommy! A happy face!

Why yes it is, dear!


A giant Miffy –
No, no! His name is Sammy!
He’s her new best friend.

Kissing Miffy Sammy goodnight

In the past week, Cordy has suddenly been leaping forward in progress. The hugs for Mira have continued, although she’s also taking toys away from Mira, too. But two new developments have me giddy and beaming like I’ve got the next Einstein for a daughter.

First, the “happy face” drawn on her knock-off magna-doodle is the first time she’s ever drawn anything other than scribbles. Cordy sat down, announced she was drawing a happy face, and then talked us through the steps involved as she did it: “Draw a face, then an eye, then another eye, then a smile!” I’d like to take the credit for teaching her that, but the truth is all praise goes to Yo Gabba Gabba, where she saw the face drawn the first time.

Second, you may remember the Miffy contest I had last month. Not only did I give away a Miffy, but I got one, too. (Thanks, Mir & Ty’s!) Miffy arrived earlier this week in a huge box, because this is a gigantic bunny. I told Cordy the box was a present for her, and we opened it together. She pulled out this mammoth stuffed animal with glee, amazed at the size but not quite sure what it was.

“That’s Miffy. She’s a bunny,” I explained.

She gave the bunny a long, hard look. “No, this is Sammy!” she corrected me.

Wha? My child is now naming her stuffed animals? And where did the name Sammy come from? Not only has she named him, but he now follows her around the house. He sleeps in her bed at night, and I must tuck him in with her.

In the morning, we must carry Sammy downstairs for her. (She can’t carry him or she’d fall down the stairs.) When I ask her what she wants for lunch, she tells me she wants a sandwich, and oh, Sammy wants a sandwich, too. Occasionally in the afternoon she’ll tug Sammy onto the couch and tuck him in for a nap.

It’s adorable, and like nothing I’ve ever seen before from her. It’s so exciting to see her drawing and engaging in imaginative play, something she had no concept of six months ago. Part of me hopes these rapid changes continue, while the other part of me wants her to slow down just a little, so I can savor these new advances.

To play along for Haiku Friday, follow these steps:

1. Write your own haiku on your blog. You can do one or many, all following a theme or just random. What’s a haiku, you ask? Click here.

2. Sign the Mister Linky below or at Jennifer’s blog with your name and the link to your haiku post (the specific post URL, not your generic blog URL). If you need help with this, contact Jennifer or myself.

3. Pick up a Haiku Friday button to display on the post or in your sidebar by clicking the button above.

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