No One Said Special Needs & Smart Can’t Go Together

Last Wednesday was Cordy’s first day of school, and while she had a lot of anxiety over it – like she does about anything new – I was feeling just as much anxiety as I stood next to her waiting for her bus. She tried her best to be calm about the whole thing as she tried to hold still while I took a million photos.

My thoughts, though, went something like this: Would she throw a fit about riding the bus? Would she melt down when she got to school and couldn’t go to the room she was in last year? Would kindergarten be too hard for her? Would her new teacher treat her well? Would I be able to stop asking myself questions long enough to notice she’s getting on the bus?

Oh. Well, uh, that was easy.

I went to sleep for the day, expecting to hear the phone ring at some point with some question or complaint about Cordy’s behavior. But there was no call.

When the bus brought her home, she was clearly tired but full of smiles. She said her first day had been great, and when asked if she wanted to go back again the next day, she replied with her usual, “Well, uh, yeah, that would be OK.”

The note from her teacher gave me a lot of hope. The teacher said she had a good day, and she mentioned Cordy seemed to have good reading skills when they were assessing her abilities.

The next day was much the same. The note home was even more promising, stating that Cordy was asked to read a 1st grade level book and had no trouble with it.

Friday was even better. The teacher was both surprised and delighted to report that Cordy read another 1st grade level book and answered the comprehension questions perfectly. She mentioned that Cordy is still whining whenever she’s asked to do something, but other than that she’s adjusting to the new routine with no trouble.

Of course, I have no idea if the teacher is glossing over any actual behavior problems or not. But I don’t doubt that Cordy is impressing her with her reading skills. We’ve suspected she could read for some time now, but when pressed to show off her skills she generally pretended like she couldn’t read. (How modest.) I’m honestly more surprised that the teacher is surprised. Surely she’s read Cordy’s evaluation report and knows that her autism has little influence over her cognitive abilities.

I’m outlandishly happy that Cordy is adjusting so well to kindergarten. Crazy, over-the-moon happy.

More than once I’ve encountered people who assume that just because Cordy has autism, she will somehow never be able to learn anything, will never graduate, and will spend her life dependent on her family. Autism seems to be a death sentence to them, or at least the death of any kind of promising future. When we first got the diagnosis, I remember mourning her potential, too, worried that she would never be able to live a “normal” life. But it’s soooo not true.

Cordy’s autism may affect the way her brain functions, but it doesn’t affect her ability to function. She can still learn, she can understand logic at an age-appropriate level, and while she has some unusual sensitivities and requires some different methods to learn, she can keep up with her peers in classwork.

Even I don’t always understand the way Cordy thinks, but she still manages to figure everything out. She resisted learning to read when we attempted to work with her, instead choosing to teach herself. She doesn’t appear to understand phonetics, and as best I can tell, she reads by memorizing entire words. But she still learns it all, even if it’s not how most people do it.

I like to think of it this way: just because most of us take the interstate to get to the park doesn’t mean that taking the back roads won’t also get you there. It might take a little longer, and your travel experience will certainly be different, but you’ll reach the same destination. 

Cordy’s travels to the park probably involve singing “My Way” with Frank Sinatra as she cruises along the twisting, hilly roads. But once there, you know she’ll have stories of a great adventure along the way.



If I’m Wrong, I Don’t Want To Be Right

Cordy begins kindergarten next week. I know many moms tear up at the thought of the start of “formal” school, and I’m holding in the water works, too, although for different reasons. After all, Cordy’s nearly six years old – she could have started kindergarten last year, but Aaron and I made the choice to give her one more year to prepare, holding firm in our belief that she would be ready for a mainstream classroom this year.

My tears come at the reality that she will be in a special-needs kindergarten class this year. I didn’t want this. I’ve spent the last three years convincing myself that everything will be just peachy for Cordy when she gets to kindergarten, that all of this intensive therapy and special-needs preschool will produce a child who will glide into a kindergarten classroom of typical children, place her safety scissors and crayons in her desk just like everyone else and blend right in with the crowd.

Message from reality, ma’am. It says: stop being a twit and take a hard look at yourself, ya weirdo. Blend in? Ha.

Stupid thinking, I know, but we were told so often over the last three years that the goal was for Cordy to mainstream at kindergarten. Goals aren’t promises, though, autism isn’t something that just disappears when she reaches kindergarten and I need to stop treating it like it is.

I didn’t fully accept it when we were told last spring that Cordy needed to stay in a special-needs classroom, and I still struggle with accepting it today. Every “but…” springs to my mind. But she’s smart. (Dumb excuse – there are plenty of smart special-needs kids!) But we’re told all the teachers in the school love her and think she’s so sweet. But she spent a summer in a class with typical kids and had no issues at all. But we didn’t have a single meltdown ALL summer. But she doesn’t qualify for speech therapy any longer, and occupational therapy has been reduced to only as-needed. How can they say she belongs in a class of special-needs-only kids?

Still they insist she isn’t ready, and they also explain that she is on an “inclusion track” where they will try to slowly introduce her to mainstream kindergarten. I’m sure this is brilliantly successful for some kids (and know it works very well for introducing animals to new situations), but I don’t know how well this will work for Cordy. After all, part of her autism is her desire for routine. She can handle transitions with some warning, and is even getting better at adjusting to small sudden change, but constant major changes seem like a big deal to me.

So we’re going to get her used to one classroom for several weeks, then expect her to go behave in another class, with a wildly different routine, for 15-30 minutes every day or two, and yank her out if she doesn’t cooperate? Um, I know I’m not an expert at this, but I think she’s going to not cooperate. Just a hunch here.

My idea was to put her in a mainstream class, accept that the first few weeks will be an adjustment (just like any kid starting kindergarten, I’d guess), providing aide support if needed, and then watch as she adapts and rises to the challenge. After all, it worked this summer – she is a smart kid, and she can figure out how to act if given the chance to learn how the class works. Coddling or baby steps generally doesn’t work for her – she’s more a “sink or swim” kind of girl. (Even if she does get mighty upset about being – figuratively – shoved in the water sometimes.)

But I’m only her mother, and it’s been made clear that I don’t understand how the system works. So I will (grudgingly, and with a lot of hovering) let them do it their way for now and evaluate the results in a couple of months. If it isn’t working to our satisfaction, or if I feel Cordy is falling behind academically in any way (and she’s already well ahead of the standard kindergarten curriculum), we’ll be calling her support team together and finding another option.

And if it turns out that this was the perfect way to do it, you’ll all be reading my admission of being wrong. In this case, I want to be wrong. I want to write an embarrassed apology on this blog for my incorrect assumptions and how silly it was to not trust the experts.

I really, really, really hope I’m completely off-base and Cordy rocks the inclusion track all the way to full inclusion faster than any other student they’ve ever had. I hope she’s such the perfect model for the inclusion track that academic papers are written about her experience.

Nothing would make me happier than being wrong. And knowing Cordy, she’ll find some way to do it, because she’s just that damn awesome, and she loves to prove me wrong.

 (photo credit: Heather Durdil)


Disturbing School District Priorities

There are times when I will defend our local school district. Aaron is a product of that district, and had a (mostly) positive experience with it, and so I often make an effort to remember that when others bad mouth our district as being poor and not living up to the standards of surrounding districts.

After all, this was the district that helped us diagnose why Cordy wasn’t like other kids her age. The special education office worked so quickly to get her enrolled in preschool and provided services to help her adjust to the world she was so apart from. Her first preschool teacher is a woman I will forever speak fondly of, a woman I’d gladly consider to be a part of our family, and when Mira qualified for special needs preschool, I immediately asked for her to be placed with this teacher for the upcoming school year.

The principal at Cordy’s current school also worked with us to make sure that Cordy wouldn’t have to go to her “home” school for kindergarten – a school we know nothing about – when she wasn’t selected for any school in the lottery, including her current school. A quick e-mail to the principal pleading our case, and a seat opened up for her. After all, the principal has been just as charmed by Cordy as everyone else who spends time with her.

But the district isn’t perfect. I truly wanted Cordy to be mainstreamed this year – placed in a classroom of her “typical” peers where she would inevitably struggle with social rules and routines, but would hopefully be surrounded by a supportive team who would help her learn and grow and rise to the challenge like she always does. However, it wasn’t the recommended choice and Cordy will instead spend kindergarten in a special needs classroom with some “inclusion” time allowed in the mainstream kindergarten class each week.

I struggled to be convinced of why this was the best option for her. Her team gave us such glowing reports at the end of this school year: she no longer qualifies for speech therapy. She’s academically at a kindergarten level already and they recommend testing her for the gifted program next year. She’s still uncoordinated and does need assistance with some fine motor tasks, but she’s improving. Why should this child be in special needs?

She has trouble adjusting to a change in routine, they explain. The normal pace in a kindergarten class may be too fast for her. (A kindergarten class has a fast pace? Remember when we spent kindergarten learning to cut with scissors and had nap time?) She’s sensitive to some sensory stimuli. She would require too much attention from the teacher, and there are too many kids in the class for the teacher to spend a lot of time with her. Yes, if she had an aide she would probably do well, but that just isn’t possible.

It doesn’t make sense to me. What I hear is: our schools are overcrowded and our teachers are spread too thin already. And I also hear, loud and clear: your daughter would do well in a mainstream classroom, but we won’t pay for an aide for her to make this possible.

I’ve tried so hard to rationalize this information. I know Columbus City Schools is cutting corners just like every district to save money. They closed several schools this year, shifting the students to other schools to save money. And at the end of the school year, 133 teachers in the district were laid off. With this poor economy, other staff received no raises, but at least they were able to keep their jobs. A levy was passed in recent years, but apparently it’s not enough to help the school district.

I try to remember that Cordy isn’t the only child in the district, and that the cost of an aide for a child like her might be too much for the district to handle.

And then.

Then I read the news about the school board voting last week to give the superintendent of our school district a raise – a raise far larger than any teacher or staff member in the district is receiving. For the next four years, she’ll receive annual 3% raises along with a retroactive 4% raise that she deferred last year. Her total salary at the end of the four years will be $217,000, making her the third highest paid superintendent in Ohio.

This is not a reward for a stellar performance. The test scores for our district are abominable. (And the average high school student in our district probably couldn’t tell you what abominable means, other than something to do with a snowman, or spell it.) The superintendent is getting a raise for a graduation rate that has made an “improvement” to 73.9%.

I don’t see the reason in it. Schools are closed, teachers are laid off, they threaten to scrap bus transportation for some students, and yet the person who has the least to do with educating children gets the largest pay increase?

On a more personal note, the district can’t provide my daughter an aide in the classroom to give her the legal right to a “least restrictive environment”, but they can make sure their superintendent is the third highest paid school administrator in the state?

I really feel the district has a screwed up sense of priorities. I have no doubt in my mind that the teachers are doing the best they can with the resources given to them, but the school board and administrators aren’t properly appropriating those resources. The teachers need more help. They need fewer students in a class, and aides to help out students who are academically ready for their grade, but might need some assistance with adaptive skills and transitions.

If Aaron wasn’t laid off in May, we probably would have enrolled Cordy in a private Montessori school. After all, she’s doing extremely

But, like the teachers in the school district, we also can’t provide the best for Cordy because of money. It sucks.

The plan at this point is to be the best advocates we can for Cordy this year, watching her progress at school closely and pushing for more integration and moving away from the special needs classroom if possible. Assuming we’re both employed next year, Cordy will then go to the Montessori school for first grade. Seeing the superintendent get a large raise when teachers are laid off, classrooms are stuffed full of more students, and when my daughter can’t get the most appropriate education because it’s not in the budget has completely turned me off from this school district.

I want to support public schools. But I can’t support a school district that I feel doesn’t use its money properly. I will vote against the school board members who voted for the superintendent’s raise, I will not support this superintendent, and should the district cry “poor!” and put another levy on the ballot in the next few years, I will not forget the actions of the district this year when I cast my vote. And I will find another district, or save all we can for a private school, for my children where I feel they will get the best education possible.



An Entirely Different Summer

Last week was Cordy’s first week of summer camp. I drafted up a supplies list for Aaron to assemble for Cordy, and on Monday he took her for her first day at a school she’s never been to. She protested a little that she didn’t want to go to this summer camp, and she missed her old school, but Aaron kept reminding her that she would have fun at this camp. At least, we hoped she’d have fun at this camp.

When it was time to choose a summer camp, we were down to two choices. One was a special-needs summer camp, where we knew she’d be accepted without question. Her autism would be taken into account and her teachers would be trained to handle any meltdowns or odd behavior. The second camp was a Montessori-based summer camp that would be filled with typical children and could pose a challenge to Cordy. The teachers assured us they had experience dealing with children on the autism spectrum, but the routine was more fluid and therefore it carried the risk of upsetting Cordy’s need for consistency.

We chose the Montessori camp. As has been proven before, if you push Cordy right to the edge of her limits, she often learns from the challenge and grows as a result. I didn’t want her in a special needs camp when I know how easy it is for her to regress. If she’s going to prove to the school system that she deserves to be mainstreamed, then she must start surviving in a class with typical peers.

Of course I was terrified. I remembered last year, when certain teachers in her summer camp made it perfectly clear that they didn’t think she belonged with typical kids. I remember feeling guilty for expecting the teachers to deal with her issues. I only wanted her to have fun and make friends. By the end of the summer, I doubted that she could name any of the kids in her class, and she had been banned from swimming lessons after several meltdowns.

This year? Totally different.

This summer camp reports that she’s a little shrieky at times, but overall is doing really well. They asked early on for tips on how to handle her, and they took our advice to give her plenty of notice before transitions and help her talk through her feelings when she’s upset by a sensory overload. There have been no calls home in the middle of the afternoon. She likes to wear her bathing suit and play in the splashing pools. When Aaron picks her up each day, she’s often playing with other kids. Best of all, she says she wants to go back the next day.

I don’t know if it’s just because she’s older, or if it’s the school’s style of teaching or just great teachers, but so far it’s working. She fits in with the other kids, she’s happy, and there have been no complaints from the teachers about her behavior. I’m hoping this experience will yet again challenge her, helping her grow beyond the anxieties and difficulties she battles everyday.

Who knows? Maybe this summer camp will make it possible to transition her into a mainstream kindergarten even faster?

Either way, knowing she’s having a great summer is one less worry for me, and that makes me happy.

Side note: Those close to me may realize I’m entirely avoiding discussing how I feel about being 34 years old as of yesterday with this post. I had a birthday. I’m a year older. Nothing much to discuss.



Graduation Day

Last week Cordy ended her final year as a preschooler. She had been through two years of half-day special needs preschool, followed by a year of full-day pre-K, and to celebrate a graduation was held for all of the kids in her class.

They all wore baseball caps that said “Class of 2010” and had gold tassels on the top as they entered the classroom and sat down in front of all the parents. The kids gave us a presentation of their talent show performance of “Eight Days a Week” and then the teachers spoke about the progress each child has made over the past year.

 (next lesson: teach Cordy to sit like a lady when wearing a skort)

Each child then received a diploma.

We ended with a tear-inducing slideshow followed by cake. Because cake makes everyone happy.

Next up for Cordy is a mainstream summer camp at a local Montessori school, followed by kindergarten back at her current school. After the massive meltdown she had on the last day of school, I’ll admit I’m a little nervous about how summer camp will go, but I’m trying to remain positive and remember that the Montessori method was designed for kids like her, and she’ll likely have a few rough days at first but will then settle into the routine of a new place.

Cordy’s also on a new medication now. Our two week period of no-meds wasn’t the worst time of our lives, but it certainly wasn’t the best, either. Despite the side-effects of the previous medication, I found myself wanting to call up the doctors and promise to never complain about irritability from the medication again if it meant she’d sit still for a few minutes to read a book or do a math workbook or do anything other than demanding to watch TV every minute of the day. The flapping came back. Her lack of focus was painful to deal with. And I forgot just how out-of-it she could be sometimes.

But after speaking with the doctors, we’re trying a new medication that they feel will reproduce the positive effects of the study medication without the irritability. It’s the safest option of the medications available, with the fewest and least harmful side-effects.

The downside is that if it works, the study will be over in a couple of weeks and we’ll have to find some way to pay for the $180/month medication.

Yep, still no health insurance here. No private insurance will cover autism, remember?

(But OF COURSE we don’t need health care reform in this country. Ahem.)

One option could be to use the old generic of the drug – when it was originally used as a blood pressure medication – which is thankfully inexpensive. But it isn’t an extended release like the newly patented version, so we’d have to give her multiple pills a day (not too big of a problem) and hope it doesn’t create a roller-coaster-like effect throughout the day (could be a big problem) as a result.

So far, we’re seeing modest improvements in Cordy already. She’s back to reading books and doing math problems. She’s drawing again. And while they do still fight like sisters – as any kids would do – she is actually letting Mira play with her sometimes. Another week or so should be enough time to evaluate her response.

I’m being optimistic, but I think that Cordy is going to have an amazing summer of growth. She earned her graduation and I’m confident she’ll continue to impress everyone she meets.

Please, fate, don’t let me have to eat those words.

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