Daughters Aren’t Always Hair Models

For the past two weeks, I’ve noticed Cordy putting her hair in her mouth. This practice drives me crazy and I’ve asked her to stop as soon as I see her do it. A few times I’ve threatened to have her hair cut super short so it won’t reach her mouth. Of course, this is an empty threat – she’s grown to love shorter hair, and I’ve become fond of fewer screaming fits over combing her hair.

Cordy has hair that many people would pay a high price for. It’s super-fine in texture, and her mane is super-thick. There’s so much hair that it takes effort to part it, then keep parting it, and then push even more hair out of the way to finally find her scalp. You could say she’s got the Rapunzel effect with hair follicles instead of length, and it easily tangles.

It’s not fair that a child with such amazing hair would also have such amazing sensory issues related to her head. I had to distract her and secretly trim her hair until she was six. Years of hair combing still haven’t made her accustomed to it and she still fights against the comb.

I miss this hairI miss all that hair from when she was little – but I don’t miss combing it.

I’d love her to have gorgeous, long locks of hair that we could style and put in ponytails or curl, but I know it’s unlikely to happen. For both our sakes, I will take her to the stylist right before summer to take more length off to get us through the warm, humid summer. She hates having it cut, but she hates having longer hair combed even more.

Mira, on the other hand, does not have her sister’s hair issues. Her hair is also fine, but there’s not nearly as much of it. And her head isn’t as sensitive. She loves to play dress up, loves hair clips, and loves to look pretty. She can be my little hair model then, right?

Nope. Turns out, this kid LOVES having short hair. She thinks it’s cute.

Cute short hairOK, she’s right. It is super cute.

When I asked her today if she’d let her hair grow out so we can put it in ponytails and braid and curl it, she agreed at first, then later came to me and said, “Mommy? I don’t think I want longer hair. My hair is too cute when it’s short! But I’ll help style your hair, OK?”

Ummm…I don’t know if I feel so comfortable with that.

I’ve had long hair for most of my adult life. (With one very bad period of short hair.) Despite having long hair, I’m not very skilled at doing anything with it. That’s part of the reason I love longer hair – it doesn’t need a lot of styling, and the basic ponytail requires little effort.

If I can’t play with my daughters’ hair, maybe it’s time for me to learn how to do more with my own hair. This video is where I’m starting: learning to put hot rollers in my hair. Maybe I should let Mira watch it, too? She’d be great at handing me the pins for the rollers.

Other bloggers are choosing their favorite hairstyle tutorial videos and asking for your opinions on which you love most. Each week, BlogHer is giving away prizes to 3 lucky winners: one grand prize viewer will receive a $250 Visa gift card and two more folks will each receive a $100 Visa gift card! Visit the Prizes and Promotions page on BlogHer.com for more info!

Hair Sweepstakes Official Rules.



When Your Big Sister Has Autism

It was an evening like any other Saturday evening. Cordy and Mira were both tired after a long day. They ate dinner and then got into their usual argument over which movie they’d like to watch that night. Aaron tried to be clever and asked them to each tell him (in secret) which five movies they most wanted to watch, hoping that there would be a couple they’d have in common.

There were none in common, of course. Which led to more arguing. Mira finally sighed that The Lion King (on Cordy’s list) was close enough to The Lion King 1 1/2 (on Mira’s list), and agreed to Cordy’s choice. But she threw in her oft-repeated complaint that it isn’t fair that Cordy won’t compromise, and how she always has to do what Cordy wants to do.

The peak of Mira’s frustration came at bedtime, though. While I was turning on Mira’s bedroom light, I heard them arguing in the bathroom. Mira puts her own toothpaste on her toothbrush, and if Aaron or I aren’t in the bathroom, she does it for Cordy, too. This time, I could hear Mira telling Cordy, “I’m not doing it for you, Cordy. You’re eight and I’m only five. Here, you can put your own toothpaste on.” I knew this could end badly, so I started towards the bathroom.

Cordy immediately went into her unhappy whine and starting shrieking at Mira, demanding that Mira stop being a mean sister and ordering Mira to put the toothpaste on her toothbrush. Mira held firm and yelled back, “No, Cordy! You’re older than me – if I can do it, you can put on your own toothpaste!” She then tried to force Cordy to take the toothpaste container.

Aaron came in at this point, hearing the commotion and already at his wits end with the bickering from the two of them. On first glance, I’m sure it looked like Mira was taunting her sister. He turned to Mira and angrily asked her why she was upsetting Cordy by shoving the toothpaste at her.

I watched as Mira held her ground, equally furious and ready to defend herself. Without hesitation, she looked up to meet Aaron’s gaze with a hard stare of her own, tears forming in her eyes, and exclaimed, “Because she’s eight years old! She’s old enough to do it herself!” I could hear the exasperation in her voice.

I stepped in at that point and tried to calm everyone down, reminding Mira that just because someone is older doesn’t mean they can do everything better than someone who is younger. We all have things we’re good at and things that require help from others. That did little to help soothe her sense of injustice as she cried while brushing her teeth, then continued crying as I gently tucked her into bed and wiped away some of the tears.

I understand her frustration. It has to be terribly confusing at times to be the little sister of someone with autism. Cordy was told about her autism a little over a year ago, when we explained what it meant in regards to how her brain works. Mira was told about it shortly after, and because of her age we’ve kept our descriptions simple for her. Cordy has autism, which means her brain works differently than most people. It means she’s really good at some things, but that she can also have a lot of trouble with things that many people might find easy.

Mira knows that Cordy often has limited patience for playing with others and when she does play it’s often only on her own terms. And while Cordy can teach Mira all about Skylanders and Pokemon, she’s not a typical big sister when it comes to serving as a role model for school, social behaviors and personal care. And she’s brilliant with reading, but refuses to help Mira learn to read.

Mira will likely learn to tie her shoes before Cordy. She can already work a button and zipper on her pants while Cordy remains in elastic waistband pants. Mira learned to buckle her seatbelt first. And while Mira eagerly anticipates each lesson in how to be independent and does her part to help the family with chores, any new task we ask of Cordy involves resistance and the need to do it in baby steps to gradually increase her comfort with this additional task added to her routine.

So in order to make things go smoothly and get more done, we do occasionally ask Mira to go above and beyond in helping out. She’s asked to help with the toothpaste when we’re busy. She opens food containers and packages for Cordy at times. She zips Cordy’s coat.

I know she tries to understand, but it doesn’t always make sense to her. Conventional wisdom says that her older sister should be able to do the same tasks she can do and more. And she feels like Cordy gets special treatment sometimes and is jealous of it. Mira does more chores, and even though she’s rewarded for her extra help, she still knows it’s not equal treatment. (Which I suppose is a good lesson for life, although hard on the spirit at five years old.) Mira doesn’t know it, but she benefits from having Cordy as a big sister – she’s awesome at accepting people no matter how different they seem, always doing her best to befriend anyone.

However, Mira is too young to realize just how important she is to Cordy. Being super-ultra-mega social, Mira provides constant social skills practice for Cordy. Mira doesn’t hesitate to tell Cordy when she’s being rude or make suggestions on how she should respond in a particular situation. (Whether Cordy listens or not is another matter.) She forces Cordy to cope with another kid in her territory all the time, meaning she has to share any decision on our daily activities. Like going out of the house, or sharing the computer, or watching TV, which doesn’t always end in arguments. Mira runs into Cordy’s wall of inflexibility all the time, but that doesn’t keep her from giving up. She continues to throw herself against that wall with the unending determination of a child, hoping that someday she’ll chip away at it and Cordy will do something new for Mira.

I’m an only child, so I’ve never understood the relationship between siblings. I know that siblings often fight, but they just as often share a fierce love and devotion for each other. I have no doubt that these two love each other, even with the fighting. Mira feels like an only child sometimes, Cordy feels like Mira is the stereotypical “bothersome little sister” sometimes, and then at other times the two of them are inseparable.

They really do like each other sometimes.Proof: they do get along now and then.

For now, I wipe away the tears as I again explain to Mira why Cordy needs her help, and then do what I can to make sure Mira feels important to us as well. Her frustration and feelings of injustice are sure to come back again – repeatedly. I can only hope that as she grows, her understanding of Cordy’s differences, her compassion and her generosity will continue to grow with her.



The Secret to Spring Break: Candy and Cardboard

Whew! Last week was a little rough on me. Every year I say that I’m going to plan something fun and structured to do when the kids are out of school for spring break, and every year the time comes and I’ve got nothing planned.

That week off of school is always a wild time for us. Cordy thrives on schedule and routine, and even if I did put a routine in place for the week, it wouldn’t be enough since it wouldn’t be the same routine she’s used to with school. So she’s generally either cranky and super-sensitive, or she’s zoned out playing games on the computer. (Which I allow more than usual, because it keeps her calm.)

Mira, on the other hand, wants nothing more than someone to play with her. I sometimes laugh (so I don’t cry) at how we had two daughters who could be such opposites: Mira wants companionship and begs Cordy to play with her, while Cordy wants nothing more than to be left alone and not bothered by her little sister. Whether they are playing together or not playing together, someone is always unhappy.

You can see how this scene plays out over a week of being home from school. However, I’m becoming a very good mediator, so I guess there’s some good to come out of it.

I decided (thanks to a coworker’s brilliant suggestion) to let them eat ALL of their Easter candy on Monday. Yes, all of it. I even threw in some leftover Halloween candy, too. They were also given unlimited TV and computer time. In exchange for this, they were agreeing to let me work with as few interruptions as possible, and to not fight with each other.

I’m somewhat stunned to report that it worked rather well. You’d think two kids with that much sugar running through their bloodstreams would be difficult to handle, but they were surprisingly pleasant and the day went better than expected. Bonus: nearly all of the candy is gone from the house. Double bonus: at one point Mira asked me, “It’s still OK to eat some healthy foods today, right mama? I’m tired of candy – can I have a banana?” WIN.

My mom came to the rescue on Tuesday and part of Wednesday, taking the kids to my aunt’s house so I could get more work done.

Aaron wasn’t working on Thursday, so he was primarily in charge of entertaining the kids. I did join in on a lunchtime trip to Chuck E. Cheese that day before I sent them out of the house to work in peace and quiet.

Friday was the hardest. Aaron was at work, I was home with the kids, and they had officially hit a wall with spring break. The novelty of no school had worn off and they were bored. For Cordy, this means she wants to retreat into her electronic devices as much as possible and avoid all human contact, especially contact with her sister. For Mira, being bored translates into being hungry ALL of the time and a need to bother Cordy. We were reaching Mom Annoyance Threat Level Red very quickly.

Our salvation came in the form of a UPS delivery man with a package. My new Keurig arrived (purchased to replace my dead one) and it was sent in a large box. As I pulled it out, Mira walked into the kitchen and noticed the big empty box. “Wow, that box is big!” she exclaimed. “Look! I can fit in it!”

I nodded as I was rushing to set up my new caffeine provider. I looked back at her just as a moment of inspiration crossed her mind. “Mommy? Can I have this box? It can be my spaceship!”

Her idea took flight in my own brain. “Why yes, Mira, that’s a great idea. You should go grab your markers and decorate the box so it looks like a real spaceship!”

She fell out of the box, scrambling to get her markers before I changed my mind about letting her use them. Returning to the kitchen with the whole pack, she set to work drawing stars and planets and different shapes all over the box.

Cordy even became interested and asked if she could join in. The two of them spent an hour making it look just right, while I sipped my first cup of coffee from my new Keurig. (It was a very, very happy hour for all of us.) The next hour was spent playing in the box while I worked.

I’ve never seen them work together so well and have so much fun with something as simple as a box. Why have we spent all this money on toys and games when all I needed was some cardboard?

To sum up: candy and a cardboard box were the most successful distractions of spring break. Take note, parents! Apparently the simple things in life really are the best.

Still, even with finding some success, I shed no tears in loading them onto the school bus again this morning. We all need our usual routine.



She’s Too Clever For Childhood Illusions

As we were driving home from school yesterday, the kids suddenly struck up a conversation about the upcoming Easter holiday:

Mira: What do you think the Easter bunny looks like?

Cordy: I think he looks like a white bunny with white sparkles all around him.

Mira: I think he’s bigger than a regular bunny. Like as big as a grown up.

Cordy: NO! He’s a normal sized white bunny with white sparkles all around him!

Mira: But when we’ve seen the Easter bunny he’s always looked bigger.

Cordy: Maybe he can change size so he’s big enough for pictures?

Mira: Or maybe the Easter bunny is just a person in a suit.

—–
I was a little stunned by Mira’s flat statement. Had she really figured it all out at only five years old?

I can’t remember when exactly I stopped believing in Santa and the Easter bunny. I think I was older than five, but I’m not sure. It’s partially blurry to me because there was a period of time when I knew they weren’t real but never told anyone I knew it for fear that I would stop getting Easter baskets and presents from Santa. Why give up a good thing, right?

Mira seemed to believe in Santa this last Christmas, but there have been plenty of clues that she is starting to wise up to the ways of the world. I blame this partially on Aaron’s involvement in a charity organization where he dresses up as a superhero to visit sick children or support charity events.

At these events, kids genuinely believe he’s Superman. Mira, however, knows that the man in the costume is really her dad. It took awhile for us to teach Mira not to spoil it for everyone by telling each kid who lit up at seeing one of their favorite superheroes, “It’s really just my daddy in a costume.”

So now she looks at any person in costume and wonders if they’re the real thing or just someone pretending to be that character.

Even at Disney World last month, she occasionally struggled to force that doubt from her mind. During most character visits, she suspended any disbelief and fully fell into the magic of seeing her favorite Disney stars.

But there were moments that caught us by surprise. Just after meeting Stitch in Tomorrowland, she wondered how he was out on the street when he was also across the way appearing in his ride. “Maybe his ride is taking a break right now?” we suggested.

Mira frowned. “Or maybe they just have more than one Stitch.”

Later that day, we were rushing to meet the princesses near the entrance to Main Street before we then ran to the other end of Main Street for dinner at the castle.

We were hoping to meet Rapunzel, although Cinderella and Sleeping Beauty were also part of the meet-and-greet. Mira and Cordy still happily met with Cinderella and Sleeping Beauty, even knowing we’d see them at dinner in less than an hour.

As Mira gave Cinderella a hug, I told her, “You’ll see her again in just a little bit at dinner.”

“She’ll be at the castle, too?” Mira looked puzzled.

“Yes, she will,” I responded. “She’ll have to hurry like we will so she can get there in time.”

Mira thought for a moment, then motioned for me to lean down so she could quietly tell me something. I bent down closer to her and she said, “Or maybe they have another person playing Cinderella in the castle, too.”

She’s in on the secret. But at the same time, she doesn’t seem to care. Mira still hugged Cinderella at the castle and acted like she was the only Cinderella there could ever be.

In some ways I’m sad that she’s figuring it all out. I wanted her to believe there was magic in the world for just a little longer. But she’s too clever for that and insists on figuring out every mystery.

I’m not ready for my little one to grow up.



Domesticity, Conferences and Dresses

Over the weekend we moved a little closer in my goal of making this house look like it has permanent residents and not just transients passing through. Two more rooms have curtain rods! Like, real curtain rods screwed into the walls, and not spring rods. That makes twice as many as we previously had.

 Please ignore the bad lighting, ugly ceiling and lack of paint. Work in progress, folks.

The living room curtain rod (which I bought over two months ago and has been sitting in a box) is also now in place, although still lacking in anything to put on it. But now that it’s in place, I’m more motivated to buy curtains. Mira’s room also has a new curtain rod and new curtains. No surprise, she picked pink striped curtains.

—–

I’m also making progress on my desk area. I bought this file organizer at TJ Maxx and can’t wait to hang it on the wall and start using it:

I love the chalkboard panels on each pocket. I don’t have a lot of papers I need for work, but if I hang it just off to the side of the desk, I can also use it to organize school papers, tax info, etc. There’s a lot of possibility with it.

—–

Mira recently asked me to make her a shawl. She had noticed the shawl I occasionally wrap myself in and when she found out that I made it, she wanted one, too. It’s been over a year since I knit anything, mostly due to an inability to carve out time for myself, so I thought this might be a good way to get me back into knitting. I clearly had no idea what I was agreeing to, however, when I took her out on Sunday to pick out the yarn for her project:

Ouch. Hot pink with bits of metallic shimmer. Well, at least there will be no way to lose her when she wears it. She’ll probably be visible on Google Earth maps.

—–

I’m going to the Blissdom conference later this week in Dallas. This will be my first trip to Texas, not counting changing plans in Houston a few times. I’m looking forward to seeing old friends and meeting lots of new bloggers and generally immersing myself in the blogging world for a few days.

Going to blog conferences now (for me, at least) isn’t so much about picking up new tricks for blogging as it is about networking and getting inspired. I’m fairly set in my ways, but I love finding new folks to read and hearing the “we matter” blogger pep talk that refreshes me and keeps me writing.

I still have to pack everything for the trip, which is the worst part of going to any conference. It seems like the minute I need to pack for a trip, my entire closet of clothing is suddenly too tight, too loose, or doesn’t match with anything else. Frustrating.

And of course there’s the flying part. I still hate flying. Here’s hoping it’s a smooth flight so I don’t grab the arm of the person next to me if there’s turbulence.

Anyone else going to be at Blissdom? I’m usually not hard to find, since I rarely stay in one spot for long. As long as you’re in one spot, I’m sure I’ll pass by. On Friday night, you’ll probably see me in a dress that looks a lot like this:

Only mine has cap sleeves and is longer.

I’ll be reviewing this dress soon. I received it for review from eShakti, and (spoiler!) I love the dress and the company. I’ve yet to find anywhere else that will customize a dress to fit you perfectly. (If you’re already interested in shopping for a new dress, I have a coupon code for your order – just use the code MMMYSTRY for 20% off.)

Now everyone think good thoughts that I don’t spill something all over myself or fall down stairs or completely offend someone with an ADD-moment or do something else to embarrass myself while I’m at Blissdom. (I’ll also chicken out on karaoke to keep myself from absolute embarrassment.)

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