Seven

Seven years ago, on this day, I was introduced to my beautiful daughter, Cordelia, and to motherhood.

OK, she was a little grumpy, too…

She was determined to destroy any pre-planned ideas of how I wanted motherhood to go. I wanted to have a natural labor – she remained in a difficult breech position that required a c-section. I planned to breastfeed – she refused to cooperate and fought me to the bitter end. I dreamed of quiet moments gazing into her little blue eyes or napping together in the afternoons. Instead I was given a colicky baby who cried day and night and forced us to bow to her whims of being in constant motion.

And yet she still charmed me and forced me to fall madly in love with her.

When she was a year old, I thought the worst was behind us. The unhappy baby had been replaced by a smiling, giggly, curious toddler with enormous sapphire blue eyes and the beginnings of golden curls.

 And a talent for stacking Diet Coke cans…

Never did I imagine the struggle we’d endure together two years later through a diagnosis of autism and the uncertainty of what the future would hold for our Amazon Warrior Princess.

Which brings us to today. Seven years old.

When did she grow up & why didn’t I notice?

Cordy is now in first grade and for the first time she’s spending 95% of her school day in a mainstream class. Her teacher tells us she’s adjusting beautifully and is held to the same behavior standards as the rest of the class. She complains that her spelling list each week is too easy and has already befriended the school librarian. We can’t keep her away from books – she has books in her bed, in her backpack, and even at the dining room table.

It’s been a year of big “firsts” for Cordy, too. First attempt at sports. First roller coaster. First real haircut (that wasn’t done by me when she wasn’t paying attention). She even let me paint her fingernails for the first time last week!

Riding Cedar Downs
 Conquering her fears of the unknown at Cedar Point

I don’t think any of the experts that evaluated Cordy at three years old would have imagined that she’d be doing so well now. She has friends, she plays with other kids on the playground at school, and while she is still rigid, demanding, and quirky, she’s learning that she can often get what she wants if she plays along with the social scripts society demands of her, no matter how silly they seem to her.

But seven years old is also scary to me. She’s reaching an age where I can no longer protect her all the time. Kids are going to be mean. The social demands of her peer group will get exponentially harder and social missteps will be judged with more severity. Cordy also wants more freedom, but I’m afraid she’s not ready for that freedom and will only put herself in the path of danger. She’s too trusting and too unaware of her own surroundings to stay safe.

Those same traits that scare me are also some of the best parts of her. Cordy’s innocence and sweetness are unending. She still has that ability to charm everyone just as she did as a baby.

And just like when she was that not-so-tiny eight-pound infant, screaming in my arms, she’s still proving that I have little control over the direction motherhood will take me. I’ll continue to love and protect her the best I can, while she will continue to grow and amaze me in ways I never thought possible.

Happy birthday, Cordy. And thank you for letting us sing happy birthday to you this year, even if you still covered your ears.

Cordy's Seventh Birthday


Dealing With A Hairy Situation

Cordy has beautiful hair.

She has hair that movie stars would kill to have. Shimmery, fine golden strands, and a mighty-thick head of them. It’s nearly impossible to find her scalp under all of that hair. Some hairs curl, some are straight, but all of them work together to create a lot of body.

And a lot of knots. As in, her hair can be perfectly combed and all she has to do is turn her head to the side to look at something and suddenly it’s tangled again. Laying down at night leads to matted hair, and even putting it in a braid overnight still results in knots. It seems to have an affinity to tangle itself without the slightest provocation.

After trying to get a wide-tooth comb through Cordy’s hair while she screamed, cried and fought me last week (a regular occurrence around our house), I decided that the time had come: we were paying a visit to a hair salon.

At nearly seven years old, Cordy has yet to visit any professional to have her hair cut. When she was younger she wouldn’t let anyone touch her gorgeous curls without a lot of screaming. It took nearly a year for her preschool teacher to let her put her hair in a ponytail. I combed her hair after a bath only by first putting on a favorite TV show to distract her, and even then she’d still cry and fight me. When I tried to cut it, she screamed that cutting her hair was hurting her. (And with her sensory issues, it probably was.)

We got by with me providing the occasional sneaky trim until last week, when I couldn’t take it anymore. Cordy’s hair is thick and needs the hands of a professional. It needs to be shorter and with layers in it to lighten the weight. This isn’t an issue of finding the right comb or the right conditioner or detangling spray – we’ve tried many and nothing works well. Until she’s able to comb her own hair or let me comb it without crying at the slightest tug, it has to be shorter and easier to manage.

So I made an appointment for Cordy on Saturday at a local salon focused on kids. I was worried that she’d have a meltdown or lash out at the stylist, but hoped she could hold it together enough to let them get a basic cut in. We washed and combed her hair right before we went in the hopes that it would have few(er) tangles in it when the stylist started combing it.

(And of course, Mira asked to have her hair cut, too. She wasn’t about to miss out on a little pampering.)

Here they were before going inside:

Before the haircut
Cordy’s face is slowly being swallowed by her hair.

Cordy was up first, and asked to sit on Clifford instead of in a big-kid chair. Hey, if it helps her cope she can sit on whatever she wants, right? I warned the stylist about her sensitive head, although she still was a little more rough than Cordy liked. I stood next to Cordy and held her hand, soothing her when she started to get worked up. She spent most of her time watching Backyardigans, but occasionally the hair tugging would get to be too much and she’d get upset and beg to leave. I’d calm her down, and then she’d get upset again – repeat X too many times to count.

Getting a haircut
Trying to hold it together
Honestly? It was exhausting for me, but needed to be done. And Cordy did better than I expected. For all of the whining and begging and occasional tears, she still remained in her seat for most of it and followed most of the directions the stylist asked of her.

Mira? Oh, she did fine. The worst part for her was that she wasn’t able to watch herself in the mirror while getting her hair cut. Vain little creature.

Serious about her haircut
she’s sneaking a glance in the mirror to the side

Finally they were both done. Mira had a cute curly bob that evened out the area where she tried to cut her own hair last year. And Cordy had a shorter, layered cut that will (hopefully) result in fewer tangles and feel a little cooler on her head.

Cute hair
Cordy is smiling because the torture is over – and because she was promised a balloon

We could have gone shorter, but I don’t know if Cordy would have tolerated another minute of it. So it’s good for now, and we’ll re-evaluate in the months ahead if we’ll attempt this again anytime soon.

Or maybe I’ll just improve my hair-cutting skills.



The Mid-August Meltdown (of mine)

While I’m spending the week trying to balance having two young girls home with me and somehow sleeping during the day (thanks mom and Aaron for the help!), I’m also keenly aware that the school year begins again starting next week.

I’m always on the verge of a panic attack before the first day of school. Last year, it was due to my disappointment that Cordy wouldn’t be in a mainstream kindergarten class, wondering if she’d miss out and never get the chance to prove she could hold her own with typical peers. It wasn’t a plan I was happy with, but it turned out very well thanks to a teacher who immediately saw Cordy’s potential and a school that is apparently completely caught up in Cordy’s charm. She was gradually introduced to the mainstream class during the year until she was spending nearly half of her day with them.

This year, my sweet Cordelia gets her chance. She will begin homeroom each day by checking in with her special needs teacher, but will then spend (hopefully) all of her school day in a mainstream classroom. This school has never had a split first/second grade classroom (a mix of both grades in one class, with the teacher teaching to individual levels), but this year Cordy will be a part of this special class, and I can’t help but wonder if this class was designed with her in mind.

In our meetings last year, there was a lot of uncertainty about what to do with our smart but socially limited child. If she remained in the special needs class, she’d get individualized academic instruction, but would lack the challenge of learning to survive in a neurotypical world.

If she went to a mainstream first grade, we’d be faced with two options: let her follow the first grade curriculum – a curriculum that her teacher tells us she’s already mastered in kindergarten – or send her to a second grade class for the subjects she’s strongest in: math and reading. The first of those options would leave her bored and therefore prone to act out, and the second option would involve so many transitions from classroom to classroom during her day that we’d be setting her up for failure.

It was during all of these discussions that Aaron and I were strongly considering pulling her out of public school and exploring the idea of a Montessori school. Sure, we’d have to sell a kidney to pay for it, but at least then she’d have an option that had the best chance for success on both the academic and social/emotional fronts.

And then at the end of the year Cordy’s teacher offered up the solution of the split class. She’ll be able to work at a second grade level academically if she’s ready for it, but socially she will have first grade level expectations placed on her. The teacher for this class is well regarded and is already familiar with Cordy. (Her son was a typical peer in Cordy’s preschool class.)

Like I said, it’s as if they designed this class for my daughter.

I took Cordy to the school last week to visit with her special needs teacher, and she discussed this year’s plan with Cordy. I can already tell Cordy is nervous about the change; it’ll likely take a few weeks for her to adjust to this new routine. The teacher walked her to her new classroom, showing Cordy that the two classrooms are just a few doors away from each other and reminding her that she can come visit her special class if she needs a break.

Still…I’m nervous. I want this to work. My heart aches at the thought of Cordy struggling with the social norms of a typical class (what if the kids don’t like her, or worse, what if they tease her?), but I know it’s what she needs to do. Every day I want to wrap her up and hide her away from everything that frightens and upsets her, but I have to draw on my own strength to reassure her and then send her out to face her fears, repeating the process whether she succeeds or fails, over and over again.

Ever since we received the autism diagnosis, I’ve hoped that Cordy could have as normal of a childhood as possible, including an education in a mainstream classroom. She’ll always be eccentric – I wouldn’t expect anything less from my child – and it’s likely she’ll have trouble fitting in. Even if she can’t blend in with the crowd, I want her to better understand how that crowd works and how to work around it.

So I’ll likely be an anxious mess for the next few weeks as we see how well Cordy adapts to her new class. We’re lucky that she has a lot of people interested in seeing her succeed, including those directly involved with her education. It also helps that the kid has a track record for rising to the occasion when needed, and we’re hoping this experience is no different.



And Exhale

Yesterday was the first day of summer camp for Cordy and Mira. I worried Mira would have trouble adjusting to a new location that wasn’t her normal preschool. I worried that Cordy wouldn’t be able to cope with the demands of being in the older kid class this year, and that her teachers wouldn’t know how to handle her or wouldn’t like her.

Thankfully, most of that worry is now gone.

They both had a great first day. Mira’s teachers said she’s a ball of energy and fun to be around. Although she started the summer by putting a few well-placed gashes and scrapes into her leg on the playground that morning, she still kept a smile on her face throughout the day. Seeing how she’s such a social butterfly, I have no doubt that she’ll be running her class before the week is over.

At the end of the day, I found Cordy on the playground away from the other kids, laying on a bench and holding a ball. Her teachers reported that she was great all morning, and then a little difficult to deal with in the afternoon. She looked tired, they said, and I can believe she was. A new environment is very stressful on Cordy, so it’s likely she hit her sensory threshold by midday. But they handled her the best way possible – they gave her some space and let her rest for a little while.

She was also very thirsty, probably from not drinking any of her water in the water bottle we’re required to send each day. While I understand their reasoning for asking that kids only bring water (other than lunch), we’ve had this battle of wills with Cordy in the past and she will pass out from dehydration before drinking water. We may have to start spiking her water with a splash of juice to convince her to drink it. I’d rather she drink an ounce of juice in 10 ounces of water rather than drink nothing at all.

But the artwork in her backpack proved that Cordy didn’t mope all day. There were beautiful, full-color drawings of people and animals, and she made a series of flags with each one containing a drawing of one member of our family. (OK, the cats all had to share a flag.) I’m not sure how well she interacted with the other kids, but at least she enjoyed expressing herself artistically.

As we drove away from camp, I asked the girls if they had fun. They both said yes. And then I asked if they wanted to go back tomorrow. They again both answered yes. (Which is a rare moment for Cordy! She generally never wants to repeat something that is new to her.)

I am now cautiously optimistic that they’re going to have a great summer.



Our Day Out With Thomas

I’ll admit I was a little lazy this year and didn’t throw a big birthday party for Mira. However, I’m not totally to blame – I had the option of throwing her a party, or instead taking her for an amazing day out with her favorite TV celebrity, Thomas the Tank Engine.

Sure, Mira likes cake and ice cream, but the opportunity to ride in a train car pulled by Thomas? What can top that?

Mira may be a girly-girl who loves pink and dresses, but she’s also a Thomas fanatic. Her blankets are Thomas. Her pajamas are Thomas. Her entire room is decorated in Thomas and the other engines. I read her a Thomas book every night at bedtime. If this kid could write, she’d probably be sending creepy stalker love letters to Thomas.

Our day started out bright and early with a long drive towards the Cleveland area. The Day Out With Thomas event travels all across the country to different scenic railways – it’s a great way to connect train-obsessed children with the local railway resources in their areas. Our stop was at the Cuyahoga Valley Scenic Railway, which had been taken over with everything Thomas for that weekend.

Aside from the train ride itself, there were lots of activities at the event. They had bounce houses and an activity tent filled with Thomas train sets to play with and activity sheets to color. The story time tent featured live readings of Thomas stories and occasional videos as well. You could also meet Sir Topham Hatt and get your photo taken with him. They had live music and a magician, a spot for kids to get free temporary tattoos, and of course a huge gift shop.

Mira gets her Thomas tattoo

Thomas was the main attraction, however, and Mira was asking where he was from the moment she stepped out of the car. We weren’t there long before our boarding group was instructed to come to the station to line up. And then, from around the bend, we saw him chugging along on the tracks:

De traaaain, de traaaaain!

I thought Mira might faint from excitement at that moment. Even as an adult, I have to admit it was pretty cool. The engine looked just like the toy models on TV, complete with moving eyes and puffing steam. We waited for the previous passengers to unload, then found our assigned car and climbed on board. Two little girls could not be happier.

No, really, they’re happy. Even if they are trying to throw the other to the floor.

The train ride lasted about 20 minutes and took us through some beautiful woods and fields. During that time Thomas music played from the speakers (very quietly) and a short Thomas story was told. A costumed conductor came through the car and punched our tickets, chatted with the kids, and near the end presented each child with their own Jr. Engineer certificate.

When the ride was over, the girls asked for a quick photo by Thomas and then they played in the activity tent for bit.

We played for a short while longer, then took a peek through the gift shop and let Cordy and Mira each pick out one souvenir before heading for home.

Did Mira have a good birthday? Well, this was her 5 minutes after leaving the Day Out With Thomas:

She later declared it was the best birthday ever. Considering all of the birthday parties she’s attended in the past month for her classmates, I felt pretty good that we came through with something that didn’t involve spending a lot of money to rent out a party facility. Parties with friends can come later – for a four year old who likes trains, I think this was a pretty awesome birthday.

Full disclosure: I did receive complimentary tickets for the Day Out With Thomas event in exchange for sharing my honest opinions of it. It was a fun family outing, and I can already tell you we’re planning to purchase tickets for when Thomas travels to southern Ohio in the fall.

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